Wednesday, October 11, 2017

Transportation screwup and another skin cancer

In the matter of getting to Dana-Farber, just having a nice driver doesn't guarantee a good trip.

Today's is up there in bad trip land. Because I got to Boston but didn't get the procedure. That's because we were almost an hour late.

My mistake I guess for being accommodating to the vendor. Due to past rides with crazy people, my paperwork with MART says I'm supposed to ride alone.

The day started out great with tennis at the Canoe Club. We had two courts and mixed in drills with snacks, stories and playing...our camp for grownups continues until we're too cold to stand it. At our last outing last year, we were bundled up in coats.

The driver arrived at 2:15 for my 4 p.m. appointment, a little late (I allow two hours) but no biggie. The first sign of trouble was when he said the other passenger to be picked up lived in Springfield. I said we would not make it to Dana-Farber by 4. He said he had looked at his GPS and was certain that we would.


We got to the apartment complex around 2:45. He couldn't find the exact apartment. Got on the phone and talked to the woman and drove around for another 10 or so. I entered the location on my phone and saw that we would get there at 4:50. Called the Kraft Blood Donor Center. They  said what I already knew, which was that I would not get there on time for the light therapy on my skin, aka ECP. They could take me tomorrow at 9 a.m.

When I saw we weren't going to make it, I wanted to say to just turn around. But I couldn't do it because the other person had to make an appointment in Boston.

I called my sister and asked if I could stay over. She said they would be around and of course the answer was yes. (I lucked into a good dinner, at least.) Called the owner of the company and asked if the driver could take me to my sister's instead of all the way into Boston for an appointment that I wasn't going to have. She said they can't take me anywhere except an address listed on my PT-1 forms, which are like a prescription for my trips. I said OK, then take me to 850 Boylston St., my dermatologist's office, which was on the way to Boston so the other patient could still get to her appointment but closer to Newton and therefore easier for me.

This is like trying to get an Uber driver to go to a different address, only worse.

She said I had to call MART. So I called the customer service line and waited for a long time before anyone picked up. As per usual.  Stated the problem. Filed a complaint, said it wasn't the driver's fault but the owner should know how to read a map and know that a detour to Springfield would not leave enough time to get me to my appointment.

I asked about changing the location of my drop off. She said this could not be done. I would have to cancel the current trip in the car that was pointlessly bringing me to Dana-Farber and book new trips. But she could not do that. I would have to call the reservation number. Wouldn't you know that I was basically crying at this point. Nobody died, but at the moment that doesn't lessen the frustration.

Oh and during that same car ride I got the results of biopsies in my ear and on my thumb.

The one on the thumb is squamous cell (in situ, or on the skin) and can be treated with effudex, a chemotherapy cream. The one in my ear is a basal cell. I will need another Mohs on it. I don't see how they take it out by layer because there is hardly any skin there.

Call reservation number. Wait on hold. Finally get an answer. The only place the driver can take me is  to Dana-Farer. I can wait there until my planned pickup time (7 p.m.) or get myself to my sister's. If I go to my sister's and cancel that ride, I will have to book a new ride home for tomorrow. I say to book the new ride home at noon tomorrow. The woman says that without a three day window, they cannot guarantee a ride. I ask if they were just going to leave me there. She says that in all likelihood I will get the ride. But she has to explain. Just in case. Just in case what? They leave me there?

The driver leaves me off at Dana-Farber. He says he is very sorry. I say it's not his fault.

I go up to the eighth floor and page Melissa. I have no pills for the night or the morning. The last time I skipped gabapentin I had severe withdrawal symptoms. Melissa says she can call in the RX to the Newton Highlands CVS. he arranges for me to get a voucher for a cab. It was $27 so I'm glad I didn't have to pay.

I don't know what I would do without her. I was going to say she is a saint except that Jews don't believe in saints. But you get the idea.

I get a message saying that I do have a ride home tomorrow.

In the morning I'm going to take the T back down to Dana-Farber.

I can't believe I even wrote this because I am so drained.

The wear and tear.

In the middle of dinner I heard a text. It was an image of Katie turned into a cat. She must have gotten what the kids used to call ESP-N. Maybe she knew that I was upset.

I played it like a gazillion times. It made me smile.

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