Wednesday, December 30, 2009

From one week to two

My counts from Monday were so good that they're letting me skip a week, so I'll be going to Boston every other week instead of every week. Haven't done that in a long time. Naturally then I have to deal with "separation anxiety" and the fear that something could develop in two weeks, but I'll take it. It would be great to untether myself so that I could focus on other things.

My white blood count was 8.3. (Normal is 3.8-9.2.)

Hematocrit was 33.0 (Normal is 34.9-43.6). My "crit" has actually been climbing without help. This means I am finally making red blood cells, a fact supported by the growth in reticulocytes. That's all I know about "retics," a new word for me, but whatever, I'm happy about it!

Platelets were hanging out at 60. They took a big jump and for now they haven't moved much. (Normal is 155-410.) I hope they follow the reds and come close to normal too.

I am still struggling with the prednisone. My liver function is better, and it would be beneficial to keep me on the higher dose of 40 m.g. a day, but when I complained about my mood, my low energy and my weakened legs, they said I could try going down to 30.

Ann had a good post on chemo brain, which made me think again of a similar frustration that I expressed, as have many others. I know part of it is about aging or just personality, but I really think increased fogginess can be attributed to chemo brain. It's about not being able to wrap your mind around the right word, doing things more slowly, being more forgetful. It's frustrating.

Sometimes I joke with the kids that they're probably keeping tabs on me. And sometimes I wonder aloud after I've done something spacey, "You're not going to put me away now, are you?" Ha ha.

But actually it's not always that funny.


Ann said...

Prednisone did strange things to me, too, but it's one of those evils that we need inorder to keep things in check. I've got my fingers crossed that you're able to taper off of it quickly. Great news on the red blood cells and platelets!

Susan C said...

That's the best present ever!

Anonymous said...

Great news re your counts and cutting back on visits! Bonne Annee! Love, Nancy

donna said...

YAY! YAY! YAY! Those great counts are a wonderful way to welcome in 2010! I remember one of your readers said that it took someone over a year out from transplant for the new marrow to start working. You are on your way!!! I'm sooooo happy! Love you!

Marilyn said...

As you say, it's hard to parcel out what is chemo brain and what is aging. Also what's just a result of being overwhelmed with info, appointments, being on alert for all possible side effects. The RAM is full! I haven't had chemo. My husband has, but both of us experience the things you've described.

Appreciate your talking about all these topics and also pointing out other good blogs!

PJ said...

I just read Ann's post, and now yours. One area in which I am especially foggy is math. While I wasn't exactly a whiz before, I now have trouble with the simplest details. We nearly had our COBRA insurance canceled because I wrote a check that reversed two numerals which made the payment $9 less than required. I guess anyone could make this mistake but I've never done it.

That's great news about your counts and fewer clinic visits. I have an appointment Tuesday, and with the way I'm feeling, I'm sure I'll need a transfusion.

Here's to diminishing fog, normal counts and a healthier new year.

susiegb said...

Great news about the counts Ronni! Here's to a wonderful healthy/getting health 2010 for everyone!!

Anonymous said...

What a way to finish the year! Excellent. Apparently those donor cells decided that you're a pretty nice person to set up shop in and finally decided to call you "home"! Be good ...and healthy!

Happy New Year! Vytas